Friday, March 22, 2013
SecondOpinion, a medical series exploring illnesses one at a time featuring a panel of physicians and other experts assessing individual cases, tackles amyotrophic lateral sclerosis (ALS). In this heartfelt episode, experts present data and Gary Temoyan shares his story, talking about his diagnosis, treatments, progression, and symptom management, which is maximizing his quality of life for as long as possible.
Thursday, March 21, 2013
Even when there are promising drug trials, they tend to exclude people who have had ALS for more than two or three years — people like Catherine Wolf (pictured below) who has lived with the disease for 17 years. The biology of the disease varies depending on how quickly it progresses and most trials require that participants be able to breathe on their own.
Catherine and I agree that there may be drugs that slow progression at different stages of the disease. Many believe that ALS is not one disease, but rather a spectrum of diseases. Therefore, shouldn't clinical trials include people with more advanced ALS?